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Saturday, April 19, 2008

Roadmap to Holland

I am reading a book at that a fellow blogger, Jennifer wrote about her first two years raising her son with Down Syndrome. This book is EXCELLENT and I highly recommend it to all parents, no matter where they are on their journey, to read. I have a 9 year old and this book is helping me remember all the feelings I experienced when I was a new mom. While I didn't experience great sorrow at Kallie's diagnosis, I remember how I felt when people first started finding out about it. I was embarrassed and wondered if people thought of me as 'damaged'. I remember when we were out in public and I wondered, just like Jennifer, if people noticed, I questioned their responses and wondered what they were thinking. I remember how badly I wanted Kallie to keep her tongue in her mouth that I would tap her tongue all the time to make her pull it in! I like when she talked about the visit with her mom and the pictures her mother took and how she ripped up one of them that was not flattering. I wanted all Kallie's pictures to be perfect and for people to think she was beautiful and that Down Syndrome wasn't that bad. I wanted people to accept her. And lastly, like Jennifer, I get offended about all the talk of prenatal testing and the goal of people not having 'a child like mine'. Jennifer is a great writer and has really brought me into her journey. These days those feelings are few and far between. I truly enjoy being Kallie's mom. Now it's not about her tongue hanging out, it's about her growling at me when she gets upset and can't express her feelings accurately. I don't look for people's acceptance as much anymore. What matters most, is that me and those I love, accept her and treat her fairly, and that we help her reach her potential.

1 comments:

jennifergrafgroneberg said...

Thank you for reading my book! It's funny the things we care about, in the beginning. And of course now, they seem silly, or unimportant...but then, they were real concerns. I hope other mothers can read about our experiences and maybe let go of the worry a little sooner than I did; to make more time to get to the good stuff, because it really is good.

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